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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Experience with Calmare/Scrambler therapy?

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Unread 06-09-2011, 08:01 AM   #1
EvaSoholm
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Default Experience with Calmare/Scrambler therapy?

Does anyone have any experience with, or know anything about Calmare/Scrambler therapy for CRPS/RSD?

On this site it almost sounds to good to be true *edit*

Last edited by Chemar; 06-13-2011 at 08:53 PM. Reason: new members may not post links
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Unread 06-09-2011, 01:59 PM   #2
betsykk
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Quote:
Originally Posted by EvaSoholm View Post
Does anyone have any experience with, or know anything about Calmare/Scrambler therapy for CRPS/RSD?

On this site it almost sounds to good to be true *edit*
Did not work for my daughter (7 treatments) but I know many it has worked for. I was told it would not work with previous ketamine exposure but someone I talked to last night had used ketamine and a scs and is doing much better with Calmare then anything else. I also wonder if the doctor I used in Va did it correctly. He was new to it. Many doctors will let you try one time for free. I did learn from the salesman that if it is going to work, you should know right away...even if it doesn't last it will give you relief when applied.

Last edited by Chemar; 06-13-2011 at 08:54 PM. Reason: correcting quoted pot
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Unread 06-09-2011, 05:03 PM   #3
debbiehub
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Default Calmar

Did not work for me...but I have it all over..I think it may work best if its in one limb. I went to Dr Damato in RI. He was trained by the inventor in Italy. If you r going to have it done you might want to see him directly...

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Unread 06-13-2011, 06:07 AM   #4
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my dr won't let me consider it. He says it doesn't have proven results. But I read of a young boy who had it and is now RSD free. But I've read more of people who have been disappointed.

I don't know what to think yet.
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Unread 06-13-2011, 04:39 PM   #5
betsykk
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it doesn't hurt to try it. i have talked to 7 people now that have benefited from it. one who did worse and one who got nothing.
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Unread 06-14-2011, 03:25 AM   #6
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I actually disagree and feel it can hurt a person with rsd. For some what is supposed to settle nerves actually stimulates. Like I would never tolerate a tens unit. Also I have read a lot that with rsd one should not have items placed in the area of which is impacted. This therapy says to place it in the region of area impacted. If one has sensitivity that is severe I really question this treatment.
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Unread 06-14-2011, 07:45 AM   #7
6kiddos
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I actually had a free consult last week in Salt Lake City. I do not have severe sensitivity and yet it took forever to get the level up to therapeutic. It was painful for me and we had to up it very slowly. Initially, the pain was better but as the treatment went on, it began to hurt worse. The electrodes were not placed on my feet...but outside the area that is bad. They did offer me another free consult at the St. George location (which I will be driving by in July and is actually closer to home) as this location has treated people with RSD more than Salt Lake has. My aunt who has trigeminal neuralgia said it worked great for her...but I know RSD is another monster.

Just my experience.
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Unread 06-27-2011, 09:15 PM   #8
Cherchers
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Default Calmare question

Quote:
Originally Posted by EvaSoholm View Post
Does anyone have any experience with, or know anything about Calmare/Scrambler therapy for CRPS/RSD?

On this site it almost sounds to good to be true *edit*
I just made an appointment in las Vegas with Dr. Chalmers - has anyone else gone here and what here the results?
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Unread 08-24-2011, 05:22 PM   #9
JoAnnRSD
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Default Going for 1st Calmare

I've had RSD for six long agonizing years. I am going for my 1st Calmare Treatment here in Salt Lake City, on Sept. 7th. From all the research I've done, including discussions with my Pain Management Doctors at the U of U Pain Clinic, I have NOTHING to loose and only my LIFE to gain back! I'll keep everyone posted! RSD changes the way the electrical pain signals are received in the brain. Calmare works by (temporarily or permanently) helping to change the electrical signals back to where they were before the pain existed. So glad they figured out how to do it! I know it doesn't work for all, but I know the odds are with me.
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Unread 08-25-2011, 07:37 PM   #10
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i know several people who have gone there and i have spoken to dr chalmers about my daughter. aside from dr d'amato in providence, he seems the most knowledgeable about rsd...however he is a ob/gyn that switched over to PM (but only the calmare machines..no meds). he was very nice and seemed concerned and he is one of the very few that offers free trials.

i am going to take my daughter to dr d'amato since he seems to have the most rsd experience and the highest rsd success rate. i am still not getting clear answers as to whether calmare works with previous ketamine or not.

calmare, spero pain and scrambler all have facebook pages; i know my calmare salesman did as well and he was very accessible.
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