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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Double vision and crps

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Unread 06-23-2011, 07:08 AM   #1
teen1976
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Cool Double vision and crps

This CRPS thing is now really taking over. I have had the condition for 8 years now after my hand being shut in a door. The condition in in my hand, arm, well actually I feel like Two Face from Batman lol, split down the middle.

For the past few months my vision has started to become a problem. I have double vision, I have seen an opthamologist who is waiting for me to speak to my consultant as she feels it's related to the CRPS. In the meantime I have a fabulous prism stuck to my glasses, this is not helping and I peel it off when at home as it makes me feel quite sick.

I'm on no medication at the moment as I seem to react badly to everything! I just wondered if anyone else experiences this double vision and is it permanent? Or as with most things related to CRPS is it different for each individual. I would be very grateful for even the smallest bit of advice as I think I will probably find out more from the rest of you then my consultant.

Thanks for your time and energy.
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Unread 06-24-2011, 02:50 AM   #2
daniella
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I don't have double vision but have major eye problems and pain. Were talking 50 apts and 10 eye specialists plus neurologists etc. It is hard to find a doctor who connects the eyes with rsd but it seems common that people with rsd have eye problems. I have heard others mention double vision. Some videos I have seen for ketamine infusions etc the patient is wearing sunglasses cause of eye problems.
For myself I hope one day if my rsd limb pain gets better that what ever treatment is used for that will also help the eyes.
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Unread 06-27-2011, 07:23 AM   #3
teen1976
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Originally Posted by daniella View Post
I don't have double vision but have major eye problems and pain. Were talking 50 apts and 10 eye specialists plus neurologists etc. It is hard to find a doctor who connects the eyes with rsd but it seems common that people with rsd have eye problems. I have heard others mention double vision. Some videos I have seen for ketamine infusions etc the patient is wearing sunglasses cause of eye problems.
For myself I hope one day if my rsd limb pain gets better that what ever treatment is used for that will also help the eyes.
Thanks for your reply. It seems that the link was made by myself but I also wish they would look further into the issue and not just pass it off as another crps problem. This eye thing is no joke is it? You learn to deal with one thing and then another bites you in your behind. There is always hope
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Unread 06-27-2011, 03:58 PM   #4
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Originally Posted by teen1976 View Post
Thanks for your reply. It seems that the link was made by myself but I also wish they would look further into the issue and not just pass it off as another crps problem. This eye thing is no joke is it? You learn to deal with one thing and then another bites you in your behind. There is always hope
Hi. I had it for the first time last week, which just happened to be the night before I saw my ophthalmologist. She told me that she - all 95 lbs of her - gets it every time she has two drinks, and asked me if I had had a lot of meds that night. I had, where it had been a rough one.

Apparently, there are a number of pairs of muscles around each eye, controlling functions such as vertical/horizontal alignment and torque. And it's the torque pair that are most susceptible to inebriation. And as a result, the eyes point in slightly different directions, the right eye veering slightly to one side, the left eye to the other.

So one question to ask yourself is whether the double-vision correlates with the use of meds, and if so, which one(s)? That may solve the riddle.

Mike
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Unread 06-28-2011, 09:31 PM   #5
DarlaDaniels
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I have been dealing with CRPS for 6 years now & I too began having eye problems but it was more of a blury sensation than double & also eye pain. It is difficult to get doctors to connect the two or to connect anything else to it & even harder to get insurance to believe that, but there are many things that get heaped upon us after having this disease.
Certain medications definitely make my eye issues worse, especially anti-seizure meds. I also seem to be allergic to most of the types of meds they have tried & have bad reactions to many others. Since I never needed any of these before I didn't know until I broke out in hives, rashes, sweats, vertigo, etc. again & again with every new med, so now I stick to strictly pain meds & refuse anti-seizures & any of the anti-depressent types they often prescribe & the hives finally subsided.
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Unread 06-29-2011, 12:06 AM   #6
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Originally Posted by fmichael View Post
Hi. I had it for the first time last week, which just happened to be the night before I saw my ophthalmologist. She told me that she - all 95 lbs of her - gets it every time she has two drinks, and asked me if I had had a lot of meds that night. I had, where it had been a rough one.

Apparently, there are a number of pairs of muscles around each eye, controlling functions such as vertical/horizontal alignment and torque. And it's the torque pair that are most susceptible to inebriation. And as a result, the eyes point in slightly different directions, the right eye veering slightly to one side, the left eye to the other.

So one question to ask yourself is whether the double-vision correlates with the use of meds, and if so, which one(s)? That may solve the riddle.

Mike

Mike, it's more than that. There are various sympathetic inputs to the eye. There are cases of essentially burned out lacrimal glands leading to chronic dry eye causing visual distortion as a result of CRPS. I personally have significant visual issues after stellate blocks. There is more to this than meets the eye...:
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Unread 06-29-2011, 12:14 AM   #7
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Originally Posted by teen1976 View Post
Thanks for your reply. It seems that the link was made by myself but I also wish they would look further into the issue and not just pass it off as another crps problem. This eye thing is no joke is it? You learn to deal with one thing and then another bites you in your behind. There is always hope
Have you been to a neurologist? After my many eye specialists I went back to my neurologist who did an mri of my brain again and ear. I was having ear pain that goes into the eye. Also you could think of seeing a neuro opthamologist. I do have a dx of dry eye and bleph but all the doctors I have seen say my pain etc is too high for that to be it. I have tried so many meds,plugs,draining I could go on and just made me worse so I am very careful of what I allow now done to my eyes.

Feel better all
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Unread 07-16-2011, 06:52 AM   #8
teen1976
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[quote=fmichael;781903]Hi. I had it for the first time last week, which just happened to be the night before I saw my ophthalmologist. She told me that she - all 95 lbs of her - gets it every time she has two drinks, and asked me if I had had a lot of meds that night. I had, where it had been a rough one.

Apparently, there are a number of pairs of muscles around each eye, controlling functions such as vertical/horizontal alignment and torque. And it's the torque pair that are most susceptible to inebriation. And as a result, the eyes point in slightly different directions, the right eye veering slightly to one side, the left eye to the other.

So one question to ask yourself is whether the double-vision correlates with the use of meds, and if so, which one(s)? That may solve the riddle.

Mike[/QUOTE

I wish I could blame medication, due to awful reactions to meds I am having to live with the condition without anything at the moment, which as I'm sure you know is quite tough. Thanks for your input.
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Unread 07-16-2011, 07:00 AM   #9
teen1976
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Thanks to all that offered advice. In the past week I was admitted to hospital as the headaches became so severe and my eyes became worse. I was given a lumbar puncture (not so pleasant) and a mri, these came back as showing nothing, but at least ruled out anything organic. I now await my appointment with a neurologist and off we go again. Frustrating. Boring. Fed up. Anxious!!!! I am aware that it's possible to put my eye and head issues down to being related to CRPS but I will push for other tests as it could also be something completely different. Excuse poor grammer, eyes sore so I'm coming off the computer bye for now.
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Unread 07-16-2011, 11:54 PM   #10
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I dont know if this helps, but I have an eye disease of my cornea that disenegrates it and I see double vision and have sensitive eyes majorly and just weird symptoms... its called kerataconus. On top of that when I look straight one of my eyes is looking a little up and one is looking down, so all day my eyes have been fighting to focus on one spot and they put prisms in my lenses.... I dont know if this might help? But I have eye pain 24-7 for 10 years now and I am only 21... so I definately feel your pain... I dont know what single vision even is. Double vision is the way I live my life. I tend to not go out during the day as much as I could because of the sun, and in the house my tv is dimmed and computer is dimmed, and all the lights are off.

Try turning lights off, and keeping everything dark, turn down the tv contrast so its not as bright, turn down pitch on the volume... too much sensory overload makes everything worse. When I got RSD all the sensitivity got alot worse. Hang in there....
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