I just passed the 15 month mark, and am at 8 and a half months since my relapse (or reinjury) in early August. That's when the photophobia started. For months I could barely leave the house and wore two layers of sunglasses, one extra dark with duck tape over all the corners so no light could get in. It was improving for about a month starting in mid-November and then got really bad again around Christmas, and didn't start to improve at all for over a month.
I am happy to say that I am finally starting to get some relief from this symptom. Tonight I was able to drive part of the way home in the dark without wearing light sunglasses (because of the headlights and stoplights), and without it hurting my eyes much. This is the first time that has happened in many months.
Oddly enough, my sound sensitivity is actually a little worse than it was a few months ago, but it is manageable. Other symptoms continue to improve very slowly, and with a lot of back and forth: brain fog, dizziness, fatigue, and headaches are the main ones. On some days, one of these symptoms is particularly bad while the others are manageable. Other days it's a different symptom that's flaring up. I've had a few days here and there when all my symptoms were down and I was able to function pretty well. That doesn't usually last for more than a day...yet.
I still have a long way to go, but at least I am seeing noticeable progress, after months of either no progress or getting worse.
Male, 38 years old, suffering from PCS after being rear-ended on 1/23/11. Was largely recovered before suffering a severe relapse in August of 2011, which was apparently caused by too much computer work.
Most persistent symptoms are light sensitivity, sound sensitivity, headaches, brain fog, dizziness, fatigue, and eye strain, all of which are easily induced by activity.
I also suffer from Obsessive-Compulsive Disorder (OCD), Chronic Fatigue Syndrome (CFS), and Major Depressive Disorder. I had all of these conditions before my brain injury, but the CFS and depression have been exacerbated by the injury.