It says here that botox can be used for migraines, but, "While the existing studies have shown that some people do benefit from low-dose Botox injections, the response rates to Botox are still unknown and it cannot yet be considered a standard treatment for headache":
I don't have any experience with traumatic brain injury, other than I have a friend on BrainTalk with TBI. But, speaking from my own personal experience with the medical community, I wouldn't accept a non-standard medical treatment for a 10-year old.
You said that they did an MRI and a CT scan. Have they checked his neck and his brain stem using these technologies?? Have they done a PET scan to narrow down where the activity is coming from??
There's TONS and TONS that's not known about TBI. I just got interested in it because of my friend. I've started keeping bookmarks: http://public.murl.com/moose53/HEALT...N_INJURY_(TBI)
(press the [page-down] key two times to get to the appropriate section)
There used to be a pretty good traumatic brain injury group on BrainTalk. But, they crashed last year and a lot of the history is gone. Although, most of the links are in my bookmarks.
Read this and see if it gives you some ideas: http://www.tbiguide.com/index.html
I don't think we have a TBI group here at NeuroTalk
There is one over on BrainTalk -- post there and see if you can get some help http://brain.hastypastry.net/forums/...play.php?f=269
Get in touch with Chaplain Patrick -- you can find his address in the 'links' on this website: http://web.mac.com/lamontglen/iWeb/B...n/Welcome.html
He used to be a member of the TBI group on BrainTalk. Don't think he is a member anymore. He's got a lot of good connections around the country. Ask him for some help and some suggestions.
You're doing EXACTLY what you need to be doing -- you're standing up for your son. Doctors -- way too often -- don't fight for kids the way that they should. You'll be an "expert" in this by the time you get something done for your boy. But, you WILL get some help for him. I believe that.
Stay strong. And keep fighting. Hugs.
PS: Here at NeuroTalk, we have a Child's Health forum http://neurotalk.psychcentral.com/forumdisplay.php?f=9
and over at BrainTalk, they have a Child Neuro forum http://brain.hastypastry.net/forums/...play.php?f=115
This one has a lot of parents with brain injuries from birth, problems with epilepsy and other sorts of things that cause headaches. If you can't get some help on any of the TBI forums, this would be a real good resource for help and support.
I know how hard it is to watch a child suffer and feel like you're not helping.
Oh, one last thing: if you, as the parent, have a "feeling" about the botox, then that "feeling" is probably right. I already told you my "feeling" about it. It's not been researched enough. I would put it at the top of my "not to use anymore" list.