Go Back   NeuroTalk Support Groups > General > New Member Introductions

New Member Introductions Welcome to our community! Come in and introduce yourself to other members!!

New to RSD and Chiari I Malformation

Reply
Thread Tools Display Modes
Unread 04-12-2007, 07:43 PM   #1
radmom32
New Member
 
Join Date: Apr 2007
Posts: 1
Confused New to RSD and Chiari I Malformation

Hi Everyone,
I'm Beth from the Outer Banks in NC and I have been dealing with RSD in my left foot since Dec. 06 from a MVA. I've been lurking around a few boards learning a lot about RSD and making sure I am getting the treatment I need. I just found out Monday about the Chiari I Malformation so I have been doing quite a bit of surfing the net. If anyone has any info to share that would be great. I wish all of you as pain free days as possible.

Take Care,
Beth Radigan
radmom32 is offline   Reply With Quote
Unread 04-12-2007, 07:59 PM   #2
Jo*mar
Co-Administrator
Community Support Team
 
Jo*mar's Avatar
 
Join Date: Aug 2006
Location: Pacific NW USA
Posts: 20,192
My Mood:
Default

Hello welcome to NT.
Another combo dx - so sorry about that.
I hope you are able to find and get good treatment for both.
__________________
Check the Helpful sticky threads near the top of every forum.
site FAQ's http://neurotalk.psychcentral.com/faq.php
Use the search tool to find information posted in other NT threads & posts
Search link - http://neurotalk.psychcentral.com/search.php
NT Guidelines http://neurotalk.psychcentral.com/showthread.php?t=1293

Find more about Weather in Manning, OR
Click for weather forecast
Jo*mar is offline   Reply With Quote
Unread 05-19-2007, 09:07 PM   #3
ANGELAMARCH23
New Member
 
Join Date: May 2007
Location: POTTSTOWN PA
Posts: 5
Cool Hello And Good Luck!

Quote:
Originally Posted by radmom32 View Post
Hi Everyone,
I'm Beth from the Outer Banks in NC and I have been dealing with RSD in my left foot since Dec. 06 from a MVA. I've been lurking around a few boards learning a lot about RSD and making sure I am getting the treatment I need. I just found out Monday about the Chiari I Malformation so I have been doing quite a bit of surfing the net. If anyone has any info to share that would be great. I wish all of you as pain free days as possible.

Take Care,
Beth Radigan
YEAH GOOD LUCK TO YOU MAKE SURE YOU FIND A GOOD DOC. I AM HAVING SURGERY ON THE 23 AND FOUND A GOOD DOC. GOOD LUCK!
ANGELAMARCH23 is offline   Reply With Quote
Unread 05-20-2007, 08:18 AM   #4
LIZARD
Member
 
Join Date: Aug 2006
Location: RI
Posts: 595
My Mood:
Default

Hey, Beth.

I just wrote Angela about this. Check out these sites:

www.wacma.com
www.ASAP.org
www.chiarione.org
www.conquerchiari.org

Also, make sure to find a good, experienced neurosurgeon so you'll know whether you're a surgery candidate or not. A neurologist will be of no help whatsoever.

Good luck!

LIZARD
LIZARD is offline   Reply With Quote
Unread 01-03-2010, 11:57 AM   #5
typicalfam
Junior Member
 
Join Date: Nov 2008
Posts: 7
Default Chiari and RSD

I, too, am dealing with RSD like symptoms that I suffered with right after my failed surgery and now came up randomly after 8 years. I am trying to get doctors help to do an MRI because I don't know if it is the RSD itself or if something has changed in my neck to cause compression.. How can I tell??

Good luck to you and I wish you all the best! Attend conferences thru the Chiari orgs. and be informed.. NEVER have surgery unless you have done a lot of research and are fully confident in your doctors knowledge of this condition.. Believe me.. I learned the hard way!!

Good luck.. ( I can't type as finger's are numb now!!)
typicalfam is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Forum Jump

Similar Threads
Thread Thread Starter Forum Replies Last Post
Post-op Arnold Chiari Malformation surgery JoAnne Hobbs Arnold Chiari Malformation & Syringomyelia 13 03-06-2014 11:57 PM


All times are GMT -5. The time now is 05:11 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2014, Jelsoft Enterprises Ltd.


All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy
NeuroTalk Archives