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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

RSD and Medicinal Marijuana?

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Unread 10-22-2013, 03:41 AM   #1
SnowWhyte
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Poll RSD and Medicinal Marijuana?

To those in states with medicinal marijuana laws (not to be confused with Marinol) does anyone have any experience with this, and the potential effectiveness of it?

I've heard promising pain-relieving success with a fraction of the side effects of pills...

Does anyone have any experience with this? Or know of anyone who does?

I'm at the end of my rope and seriously considering moving across country to get help...

Please any input you may have would be huge for me! Thank you!!
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Unread 10-22-2013, 10:55 AM   #2
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Yes, I use it, but it only helps to a degree. I have not taken opiates at all for my RSD so I'm really not sure how much difference there is. But I have taken them in the past, I'm sure that they'd work better, but then I would have to take them everyday. I did become physically addicted to Percocet after my trauma from a low dose, so I'm not really eager to try opiates or narcotics again.

MMJ works a little differently for everybody. I assume you've tried it before in your life and knows how it feels for you in general. I don't know the quality of the stuff you have around town, but I'd at least get some to try out before moving. Here it's really good, plentiful, etc. In the clubs you can go in and get it in lots of forms. I need to renew my card and go into a club and try the stuff I can rub on my feet. (I've been lazy and I get mine from my supplier for cheaper). There are strains that work specifically on what we're dealing with. Sometimes I get a strain that I could smoke and smoke and not feel much of anything because it's the wrong type.

For me it allows me to get home from work, smoke a little, do what I need to do, like make dinner. But as I feel like I'm getting worse, that is becoming harder to do, so sometimes it's just enough to keep me from ripping my legs off. Last night my feet hurt horribly because they had been cold all day. I rubbed them to get the blood flowing, trying to desensitize them. It wasn't until I had enough MMJ that I could calm down and feel well enough to eat and relax. I'm always nauseous so it helps that a ton. It allows me at least a couple hours of decent sleep, I don't usually wake up until 3am or so, and then I know I'm sleeping lightly after that and not really getting REM sleep.

Last weekend we had a ton to do and had to go shopping. I had it after about an hour in and out of stores looking for stupid computer parts. I wanted to break down so bad. I got home, smoked a little, and then I could go back out with DH and finish a little of what we needed to do.

It does work on different things then what other drugs do. But I think we all know that happens. The antideppresant vs. antiseizure vs. opiates vs. MMJ. I'm using everything except the opiates (so far). I do need something for breakthrough pain. My pain doc will NOT give me anything because I do smoke MMJ. So there is that to consider, even though I'm in a state that says it's okay. I think a different pain doc would allow it, but the area I'm in doesn't have a lot of docs. So now I suffer and lay in bed or on the couch if I'm in that much pain, I end up smoking all day to keep from crying. That isn't an optimal solution.
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Unread 10-22-2013, 11:14 AM   #3
mommystime2
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I cannot reply on mmj but I recently went to a concert that was non smoking of cigs but many were smoking pot, I went in in severe pain, took my pain meds with no pain relief but as the night went on my pain decreased major time n my contact high was severe lol so maybe?
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Unread 10-25-2013, 03:59 PM   #4
CRPSsongbird
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Default I can help a little

When I have higher than normal pain, and not an actual flare, it can help to get to sleep sometimes. I prefer an edible version ei: brownies. You get more of a "body high" with the edibles instead of feeling the pain and just a bit more stupid. Opiates still work better for me for the bulk of pain control but it can help.
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Unread 10-25-2013, 04:15 PM   #5
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I've never tried it, but if it's legal here, which I think it is now, i may if I ever get to the point where nothing else I'm taking right now helps.
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Unread 10-25-2013, 08:58 PM   #6
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I use it daily, legally. Yes, it definitely helps. Does it make me completely pain free, no, but it does take the edge off, or help with nausea from other meds. It really helps me get to sleep and I am thankful for that. I also have a CBD syrup that I use. There is no euphoric from it because it is very low in THC, but the CBDs help calm the nerves in the body.

I posted this once before, but if you get a minute, check out this video on MMJ and CBDs. Its scientific and interesting.

Part 1 http://www.dailymotion.com/video/xh0...nabinoids_tech

Part 2 http://www.dailymotion.com/video/xh0...n-1-newrelated
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Unread 10-25-2013, 09:20 PM   #7
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I sure wish it was legal in my state (VA). I want to try it as I think I would benefit from it since I cannot take most medications.
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Unread 10-25-2013, 09:27 PM   #8
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Quote:
Originally Posted by Nanc View Post
I sure wish it was legal in my state (VA). I want to try it as I think I would benefit from it since I cannot take most medications.
IMO it should be legal everywhere. With the condition we have, and the limited options for treatment, it is wrong to deny you. They are getting very creative with ways to take it too. I heard the other day that they are working on a patch. I can't wait for that. If nothing else, perhaps you could visit Colorado sometime after Jan 1st when it becomes legal for everyone. At least you could try it. I know that MMJ tourism isn't cheap, so this idea may only be a pipe dream (no pun intended)
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Unread 10-26-2013, 10:25 AM   #9
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Completely agree Vrae, it certainly should be!

Here in the UK it's as far away as the moon...our politicians are so scared of the anti-drugs hype that the medical benefits of marijuana are immaterial - the fact that the stuff was taken medicinally long before the hippie crowd got hold of it has been completely lost. It's tied up in more red tape than Santa's sack of presents and the fact that it might ease the pain of some patients with a rare condition no one understands or has heard of makes it very easy to ignore. Even MS patients have to jump through hoops to get Sativex (the only drug with a marijuana derivative licensed in the UK).

I'd love to have the chance to try it. I don't want to get high, or smoke anything, but I want to try the cannabinoid part that haa proven exciting in the research of pain relief. Why why why is it taking so long to isolate that, and make a drug that might benefit us?!

Maybe in twenty years time...

Bram.
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Unread 10-26-2013, 01:38 PM   #10
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There was a news story about a little girl (I think in Colorado) for whom they developed a special strain of MMJ and it was even named for her. Her parents were at the end of their rope and tried everything for her and struggled with the idea of giving her MMJ. then they found a medical MJ supplier who had a strain that did not give much of a high and mostly contained CBD's. The grower had almost given up on it because no one wanted it.
Well, it was a miracle for the little girl and now they're growing it for all kinds of pain relief.
I wish I could find a strain like that.

And as for my vote it should be legal everywhere. I think it's all about parmaceutical companies and money getting in the way. Otherwise if you think about it, how addicting and harmful are RX drugs? And alcohol, think of the damages that can do.
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