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Foot drop, finally figured it out!

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Unread 12-23-2013, 06:24 PM   #1
misshayleesmom
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Default Foot drop, finally figured it out!

It never occurred to me as to the reason I was having so much trouble walking.
I thought it was the spasticity and weakness, but I've been feeling for awhile now that I can't lift my foot properly.

It is worse when I'm wearing no shoes and on a hard floor, I've been using a cane for a few weeks now and it does help, but when I don't have it I really notice it.

It is a HUGE effort to walk.
This makes so much more sense now!
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Unread 12-24-2013, 01:17 AM   #2
Erin524
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Go to a doctor, possibly a physiatrist (medical doctor that specializes in physical therapies and rehab) and see if you can get them to Rx an AFO (Ankle, Foot, Orthotic) and some physical therapy.

I can tell you from experience that an AFO really does help a lot.
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Unread 12-25-2013, 08:57 AM   #3
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Default Me too...maybe

Hope Erin's suggestion helps.

I'm not sure if I have the same thing or not. I'm always catching my right toe on the edges of carpets or sometimes even tripping when the bottom of my foot doesn't clear the floor, pavement, or ground. But is it foot drop, or is it because it's always hard to lift that leg? It's hard to tell, and I'm so tired of spending money on things that don't help.
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Unread 12-25-2013, 09:05 AM   #4
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I have terrible foot drop on my left foot. Always tripping over that "invisible" whatever that pops up when I'm least expecting it.

I have found that I walk so much better without shoes on. Just socks. But that's when I'm at home and on a familiar floor. Seems like once I put shoes on it gets 10 times harder to walk. Even with my rollater. I've never had or tried an AFO.
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Unread 12-25-2013, 04:09 PM   #5
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If you're regularly tripping because you're not lifting your foot up, it's possibly foot drop. I started tripping about a year or two before I found out that I had MS. I was walking thru the mall once, and face planted on the floor. If I'd only done that once, it wouldn't have disturbed me so much, but for about a year or two before I found out I had MS. I was tripping a lot during the summer. Enough that I was starting to wonder what the deal was with that.

After I got diagnosed, and I started having various areas on my legs go numb, the tripping started to make sense. When I developed the foot drop, that kind of convinced me that the occasional tripping that I'd been doing was from the foot drop, it just hadn't gotten so bad that I'd really notice it unless I was walking really fast, or walking on uneven ground/flooring with lots of rugs.

When I got the full blown foot drop, the kind where you're dragging your leg behind you, that's when I had to go to the physiatrist and get the AFO Rx-ed to me. Mine is an articulated AFO. It's two metal braces that are mounted on my shoe. It has hinges on it to help lift my foot. Supposedly to help me walk more normally, but something happened earlier this summer, and I feel like I'm dragging. I saw the physiatrist earlier this fall, and he didn't seem concerned about it.

I asked about getting the electronic thing that goes around the calf of the leg, that triggers the nerves to help me walk. He said he'd help me look into it, but either he forgot, or his staff didn't try very hard to contact me. I got a phone call from them a week after I saw him, but I was at PT and couldn't answer my phone. Whoever called me from his office didn't leave a message, and every time I call back, I always get sent to voice mail. I. Hate. Voice. Mail.

My insurance changes in a week, so I'm probably not going to get the fancy electronic nerve triggering thingie. My new insurance's deductible is higher than the cost of the electronic thingie...plus it's a medical device and the new ACA regulations say they can tax you a bunch on medical devices. So, it's probably not going to be affordable to me. (the electronic thingie costs $6,000. My new deductible is probably $10,000) Kind of peeved about that. I'm going to miss my old insurance with the $2,500 deductible.
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Unread 12-25-2013, 04:20 PM   #6
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This is what my AFO looks like. The first three pictures are from when I first got it. The last picture is when I had the AFO put into a new shoe. I don't like it as much now. I think they mounted it too far back on my shoe, and the pivot point isn't the greatest now. I feel like my foot is slapping down when I walk.

I need to go back to the place that made the AFO for me and complain about it a little more. I'm not happy with how they treated me when I talked to them the last time. Like they didn't believe me that there's a problem.







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