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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

has anyone used a Ketamine cream?

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Unread 05-19-2007, 09:15 PM   #1
lostmary
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Confused has anyone used a Ketamine cream?

I just got the cream that my PM had compounded at the pharmacy. It is a Ketamine 10% cream with PLO gel? Has anyone every tried this. I can only use a small amt on my feet because it has the same effect as PCP and the date rape drug? Just wondering? I used today when I got home from grocery shopping. My feet hurt so bad that I don't think anything could have helped. took a percecet and use the cream and went to bed. can't use it again it again until tomorrow afternoon.
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Unread 05-20-2007, 02:16 PM   #2
RSDmom
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My daughter was prescribed a cream that has a mix of 10%ketoprofen,5% ketamine, 5% gabepentin (Neurontin generic), 5% lidocaine, in a lipophylic base. I remembered a thread a while back that people had responded to about creams and how important bases were so when I had the pharmacist create this, I had him make the smallest dose for the prescription and then we could tweak it as necessary. We applied it after warming the foot--usually moist heat and massaged it in for up to four minutes, moistening it as it became tacky. The pharmacists said this was the best way to ensure its absorption. She felt some relief with the cream for breakthrough pain. We also got the socks for lotion as it was a bit greasy. She applied this four times a day.

I searched for a previous thread on this-- it was on page 19--not sure how to hook a link here, sorry. It also referenced an earlier thread to it.

Hope this helps-
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Unread 05-20-2007, 05:34 PM   #3
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Hi,

here are links to three previous threads about ketamine and compounding creams, hope they help
This is the thread that has the specific post from daylilyfan regarding bases:http://neurotalk.psychcentral.com/sh...ad.php?t=10728 - here's the specific post: http://neurotalk.psychcentral.com/sh...1&postcount=11
and also see these threads:
http://neurotalk.psychcentral.com/sh...ad.php?t=14439
http://neurotalk.psychcentral.com/showthread.php?t=9850

all the best!

Last edited by artist; 05-20-2007 at 08:53 PM. Reason: adding URL....
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Unread 05-21-2007, 07:15 AM   #4
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RSDMon and Artist.
thank you so much for the information. It does help to know that I'm not the only one using this cream. The doc put the fear into me about the cream. He said use only a small small amt, that if you put too much on then I would be hallucinating. The first day didn't really do anything,but I did get some relief yesterday when the pain started getting real bad.
thanks
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Unread 05-22-2007, 09:59 PM   #5
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I was also prescribed a cream similar to that about 4 months ago. The first one did nothing so the doc told me to stop using it. The second one, unfortunatly, landed me in the er for a few days because of a severe allergic reaction unrelated to the rsd but another disorder. But the allergic reaction to it did cause the rsd to spread (I didn't know rsd could spread from allergic reactions). Sorry I haven't been much of a help with this topic. But I do know someone who had some success with the cream.

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Unread 05-28-2007, 06:18 PM   #6
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I use a Ketamine gel 3 times a day. It's 15% Ketamiine, 10% Lidocaine and 2% Clonidine. I rub it in gently and then wrap my finger (what's left of it) with Saran Wrap so that none of it evaporates. It does help. but it's no magic bullet.
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Unread 05-29-2007, 06:47 AM   #7
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Does it seem to help. I have to put it on my left foot. Thurs. I misstepted and broke my 2nd toe on my right foot. also ripped all the ligaments apart. I have to keep it taped for 6 weeks to give it a chance to mend. I was thinking of using it on my right foot, but after all the things I've read about misusing drugs, I'm afraid it would be too much or something. I guess I could call my PM and ask. But I know I will not do it. I didn't know about the saran wrap. He said that if I have to go out to wrap it, but I try to use it at nite. which for me is 8.00pm. I guess it would help and not let it get on the sheets. thanks for the advice. I'm gonna try it.
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Unread 05-30-2007, 08:21 PM   #8
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This is just my experience with the ketamine cream. Your reactions could be different.

I use a cream that is 10% ketamine hydrochloride with some other ingredients... I typically use it on the entire top of one foot, about 1/3 of one calf, on one upper arm, and about 75% of my back. I am allowed to use it 4 times a day.

I don't use it right after getting out of the shower, or when my skin temp is really warm, as it seems to work a lot more then... I have had my tongue feel numb before from doing this but have had no other problems.

Oh... and one time, my massage therapist was putting it on for me after a session. It was the first time she applied it. She was expecting a thicker cream. It is almost a watery liquid. When she went to pour a small amount onto my back, a lot came out, and so she just rubbed it in. Again, I think my skin was warm from the massage.... I did get a light-headed feeling for about half an hour. This was using about 3 times the normal amount. I did not feel really impared... just like I had perhaps a half glass of wine. My massage therapist does apply it with gloves though - she is afraid it might numb her hands - not good for the next patient

I like the lidoderm patches because they last longer... a lot of my "areas" are in places I cannot reach, so cannot apply more cream once I am at work. So, I use the patches on those areas, and then use the cream on the places I can easily reach to re-apply. On days I don't work, I use the cream only.

If your read the links to the other posts... you will know that I really believe that the base used for the cream makes ALL the difference.

Jules
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Unread 09-07-2008, 10:52 AM   #9
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Ribbon is this a presciption

Quote:
Originally Posted by lostmary View Post
I just got the cream that my PM had compounded at the pharmacy. It is a Ketamine 10% cream with PLO gel? Has anyone every tried this. I can only use a small amt on my feet because it has the same effect as PCP and the date rape drug? Just wondering? I used today when I got home from grocery shopping. My feet hurt so bad that I don't think anything could have helped. took a percecet and use the cream and went to bed. can't use it again it again until tomorrow afternoon.
Mary
is this a prescription or over the counter that you can get?
Linda
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Unread 09-07-2008, 04:36 PM   #10
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abbysmom,

It is a prescription compound. I have to go to a special pharmacy to have it made. It really does seem to help. I've learned that I can use more of it that I first thought. It helps other places that hurt also. It does last a long time, but it is kinda expensive. I think the last time I had it made up, it ran about 125 for a jar. It does last several months tho, so I think it is worth it.

Mary
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