AshFreeze

Since the Canadian RSD newtwork has collapsed there are two Canadian Sites..

Promoting Awareness of RSD/CRPS in Canada (P.A.R.C.).

DianaA

Infohungry just sent me this link for me share with all of you. I hope you all find this interesting.
Di

http://crps.physiciansforpatients.com/

We are a group of doctors dedicated to helping people online in a way to help with high health care costs. The idea is to give a resource to people that need alternative opinions and information.There are a lot of people that have limited access to health care (either uninsured or simply can't afford it). This way it is easier for a smaller number of physicians to help a larger number of people.

Dr. Colantonio is the doctor. He is board certified in both pain medicine and anesthesiology (so he is up to par on his nerve blocks). He trained at Duke University and Oregon Health and Science center.

If you think any of the people in your group might benefit from this resource, please consider sending out a group message.
(we are JUST getting started.)

Mslday

Courtesy Jim Broatch of the RSDSA:

Author: Schwartzman RJ, Erwin KL, Alexander GM
Title: The Natural History of Complex Regional Pain Syndrome
Source: Clin J Pain. 2009;25:273-280.

http://rsds.org/2/library/article_ar...lexanderGM.pdf

Here's the abstact:

Objective: Complex regional pain syndrome (CRPS) is a severe chronic pain condition characterized by sensory, autonomic, motor, and dystrophic signs and symptoms. This study was undertaken to expand our current knowledge of the evolution of CRPS signs and symptoms with duration of disease. Method: This was a retrospective, cross-sectional analysis using data extracted from a patient questionnaire to evaluate the clinical characteristics of CRPS at different time points of disease progression. Data from the questionnaire included pain characteristics and associated symptoms. It also included autonomic, motor, and dystrophic symptoms and also initiating events, ameliorating and aggravating factors, quality of life, work status, comorbid conditions, pattern of pain spread, family history, and demographics. Comparisons were made of different parameters as they varied with disease duration.

Results: A total of 656 patients with CRPS of at least 1-year duration were evaluated. The average age of all participants was 37.5 years, with disease duration varying from 1 to 46 years. The majority of participants were white (96%). A total of 80.3% were females. None of the patients in this study demonstrated spontaneous remission of their symptoms. The pain in these patients was refractory showing only modest improvement with most current therapies.

Discussion: This study shows that although CRPS is a progressive disease, after 1 year, the majority of the signs and symptoms were well developed and although many variables worsen over the course of the illness, the majority demonstrated only moderate increases with disease duration.

Originally posted by Fmichael under http://neurotalk.psychcentral.com/thread88983.html

MsL