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Parkinson's Disease Tulip

Monkeys in the Middle

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Old 08-29-2009, 04:50 PM   #1
reverett123
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Default I'm speechless

he subject of Amgen came up on PLM and a PWP actually defended the company and dismissed the video footage as "not impressive." Do you suppose that Big Pharmamight plant shills in PLM? http://www.patientslikeme.com/forum/...ew=last#725362
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Old 08-29-2009, 04:55 PM   #2
paula_w
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Default and he is an expert?

Rick this is an easy one...he is looking at pictures; we looked and talked to patients. End of response.

go tell him - i haven't joined...lol
paula

sorry i am into sinemet hyper hour - didn't mean to be rude - would you please tell the potential schiller the response as i am not a member of plm.

many thanks,
paula
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Old 08-30-2009, 09:20 AM   #3
Bob Dawson
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Default lots of links

Paula,
As you recommended, I have ordered Nick's book. I wonder where he is - the e-mail link on his site does not work any more. The other thing I did yesterday was posting Chapter 22, and I included a lot of weblinks supplied by people on this site. I don't need all the details to know where I stand on this but Amgen or their servants use details to confuse, so I thought a few readers of my site would want to arm themselves with information to argue back; which is very easy, if they have the links of all the huge, gigantic amount of information that some of you have posted. And I had to go watch the videos of Andy Grove again, and read his words - I love that man. Can we get him to come to our rescue some more?
With Chapters 21 and 22, all I am doing is adding a search-engine findable site for the future; in addition to everybody else's sites, to make sure that the Parkinson's volunteers are not forgotten. Most PWP do not know about this, and almost no one in the "general population" knows about it. I know that some of you worked hard to get the word out at the time it was happening, and the world just let it go by. But with the Baby Boomers retiring, the number of PWP in the USA is expected to increase from one and a half million to eight million people. I want about seven million of them to know about this. In other words, I expect there will be more people angry about this in the future, than now, or than when it happened. The audience, sadly, is growing; but there will be a tipping point, a critical mass, where they will be ready to turn and fight, and the experience of Amgen will instruct them to be prepared and hit hard. In that sense, the 48 volunteers are the first soldiers landing on D-day, gunned down by the enemy, but winning a landing point where a massive army is going to come ashore.
The only dilemma is how to find enough outlets or e-mail addresses to spread it around. In the past year, I contacted all of the PD associations in the USA, Canada, and most of Europe, and I got one reply. How to get through to actual people, rather than answering machines?
If anyone has lists I can e-mail to, I promise I will only e-mail them once. Or if it is your list of contacts, you e-mail them. "You" being anybody who is interested.
But, in any case, this story has legs. It is a huge story and it involves everything imaginable. Even if I never mention it again after the end of this sentence, I know that the story is picking up momentum and is spreading. The volunteers, who offered up their living bodies for the benefit of all mankind, and who were brutally betrayed, will not be forgotten.
chapter 22:
http://parkinsonsdance.blogspot.com/...hapter-22.html
chapter 21:
http://parkinsonsdance.blogspot.com/...r-21_3946.html

Peace and love. It's not just hippie talk. At the same time:
Give war a chance. We need a full-scale war against Parkinson's, not more studies about how much chocolate we eat or how much gambling we do.
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Old 09-18-2009, 10:18 PM   #4
Bob Dawson
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Default calmed down

calmed down now
will not forget
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Old 09-18-2009, 10:29 PM   #5
reverett123
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Default

Quote:
Originally Posted by Bob Dawson View Post
calmed down now
will not forget
Nah, Bob, don't calm down. If nothing else, go to my blog and copy the Amgen sticky to your blog. It could start a landslide
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Old 09-19-2009, 04:19 AM   #6
jingle belle
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Default Bob, Paula, & others

Quote:
Originally Posted by Bob Dawson View Post
calmed down now
will not forget
I was one of the 48 in the GDNF phase II trial and I just want to say thank you. My Doctor tried to tell me that it didn't work. I know that it did. I also know that I will probably never again get the opportunity to get better like that, and it makes me really angry. There were so many things about the trial that distroyed trust. One thing that I would really like to see a push for, and that is, that if/when foreign things are put in the body such as tubes (GDNF) wires (dbs) etc. - that they should be monitored regularly and that if the Doctors/powers that be/writers of consent form put something in writing that the patient signs - that they should be held to their promises!!! not just the patient. I understand the need for flexibility with newly gained knowledge, but the patient is not a monkey or a rat but a human with a brain!!

jingle/april - with scars
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"Thanks for this!" says:
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