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numbness// or feeling like you dont have legs

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Unread 07-13-2008, 08:06 PM   #1
sabimax
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Default numbness// or feeling like you dont have legs

Ok, as many know here..I am undx..so maybe not MS...

but wondering if any of you have feelings of, not only numbness tingling sensations...but then feel like your legs arent there..or arms...hard to explain the feeling...but feel like they hardly are there due to numbing feelings...then have troubles with coordination. Actually last night as I layed down to go to bed, felt so numb but wierd, I thought wow what if I woke to not feeling them at all!!

Anyhow, guess venting about the sx, but also wondering if sounds familiar to anybody...and if you know of anything that helps...??

Mainly most my sxs, come with humidity, or if I overheat my body...or sometimes stress too can agrivate the sxs....

most sxs...numb/tingling, pins needles, balance issues, this wierd feel like parts arent there, have suffered with vertigo, loss of sensation (touching things that are hot thinking they are only warm etc, or not knowing I have cut myself..as didnt feel it), cognitive memory issues...(which a neuropysch talked to me about verbal memory recall is very bad she thinks from a neurological illness....which then neuros say nooo adult ADD....)

ok anyhow...many sxs..undx...for many many years...

Just trying to not worry about future at work..I work on my feet...and use arms and hands lots...Manage a McDonald's.....last two shifts...I did have some troubles with arms and hands working the way I want them too..or my legs too....so getting bummed...but trying not to get worried...dont want to agrivate sxs more. Any advice...or ideas thanks, sarah
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Unread 07-13-2008, 08:19 PM   #2
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............but wondering if any of you have feelings of, not only numbness tingling sensations...but then feel like your legs arent there..or arms...hard to explain the feeling...but feel like they hardly are there due to numbing feelings...then have troubles with coordination. Actually last night as I layed down to go to bed, felt so numb but wierd, I thought wow what if I woke to not feeling them at all!!

Gosh yes Sarah. Those leg feelings were what got me diagnosed in the first place. My legs were "dead" numb, so dead that you could stick a pin in them and I couldn't feel it, but at the same time, they felt like there was a swarm of ants crawling up them. Of course there wasn't though. And cold........they felt icy cold to me, but to other people who touched them, they were warm.

I'm sorry to hear that you're having a flare of whatever it is, and I do hope it passes soon for you. Maybe you're overdoing it a bit in the heat with the children and a new job?

In the meantime, sending you hugs.....
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Unread 07-13-2008, 08:19 PM   #3
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Wish I had some words of wisdom.

Sending hugs and warm wishes.
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Unread 07-13-2008, 08:23 PM   #4
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You're able to manage a McD's while dealing with those symptoms? I'm impressed. I dont think I'd be able to do that. I used to work in a McD's, I just cant imagine working there again with MS symptoms.

The store was always hot in the summer. A/c usually carped out at 80 degrees, and working in the grill area was always super hot.

What's weird, is that I've had dreams of working at McDonalds again...a lot of them lately. Sad thing is, working at McD's, even tho I hated it, was a lot more fun than some of the jobs I did after leaving there. Most of the dreams I've had about working there have been fairly entertaining, without any of the angst and stress I dealt with most days.
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Unread 07-13-2008, 08:40 PM   #5
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Sarah,

I know that feeling (or lack thereof) very well.

It is a strange situation.

Each time I had it, my neurologist put me on steroids except when I was ill with the flu or a cold.

I hope that it gets better for you.

I would contact the neuro on Monday about it.

-Vic
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Unread 07-13-2008, 08:49 PM   #6
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......Each time I had it, my neurologist put me on steroids .............
Me too Sarah. Always steroids for these numb type feelings no matter where they were. Maybe a phone call to your doctor might be a good idea?



Edit: Sarah, I'm adding extra to this because I really think this "event" needs documenting.

Because you don't have a diagnosis, and MS is still a posssibility, these symptoms could add to your McDonald's Criteria.....not that I want you to have a dx of MS, far from it, but every little bit of information fits somewhere in the puzzle!

Please phone your doctor and tell him/her about what's happening to you.
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Last edited by Koala77; 07-13-2008 at 09:25 PM. Reason: Added some.
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Unread 07-13-2008, 09:44 PM   #7
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On several occasions, in the early years of "all my weird symptoms," I would have an odd sensation that my legs were tree trunks.

They were not numb, paralyzed, or stiff. But I would be standing (like in the shower or elsewhere) and have this feeling that my legs were not my legs--they were just somehow like tree trunks, somehow VERY DIFFERENT from how my legs normally felt. I wasn't imagining it.

I believe this was a disturbance in the "body map" which we have in our brains. Think about people with phantom limb pain--pain in a body part that has been amputated or paralyzed.

The brain can get wrong signals about how a limb does or doesn't belong to the body. The neurologist Oliver Sacks wrote very interestingly about the "scotoma" he experienced with regard to a leg that he'd injured, where the nerve connection was damaged.

Read his book "A Leg to Stand On." It is a very moving description of what we limbolanders experience with respect to not having doctors listen to or understand us. (Sacks's own surgeon brushed off his description of the "missing leg.")

Nancy T.
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Unread 07-13-2008, 10:27 PM   #8
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sarah i get that feeling too...it has caused me to fall several times...try to stand up and whoops no leg. i constantly have tingling and pain in my legs, more so in my right leg. also my legs will feel so cold but they aren't...100 degress outside i'm inside wearing sweat pants cause the a/c feels so cold.

another weird/strange feeling i often get is actually kind of scary. i will be laying in bed on my right side trying to go to sleep...and i feel like i am sinking then when i try to roll over i can't move....i can move my arms but waist down doesn't want to move at all....like i've sunk down into concrete. i'll lay there a few minutes and it goes away.

now i'm dealing with yet another oddity...when i walk my right foot turns outward...i don't do it myself, just walking along and notice that every step my right foot lands turned out. if i stop and "purposely" turn my foot in the way it should be it's fine...until i start walking again.

i'm not trying to hijack the thread, just letting you know that you aren't alone and i know exactly what you are talking about.

Please keep track of every little thing that seems out of the ordinary for you and let your doctor know.

You're in my thoughts & prayers,
Susan
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Unread 07-13-2008, 10:44 PM   #9
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Sorry to hear you're dealing with this, Sarah..I've been known to lose track of body parts from time to time .. The numbness isn't necessarily always the problem. If I just close my eyes for a while, I can't picture where a leg or an arm is unless I move it. Don't know if there's anything that can be done for it, really..Koala's right though, document everything. Somebody's going to be able to put these puzzle pieces together!
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Unread 07-14-2008, 04:40 AM   #10
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just gotta find htat somebody...

as maybe I will call my primary dr....but any neuro I have seen, has been over all the wierdo sxs...and then look at the few clear MRIs and say..well not neurological..and brush me off.....long story...

anyhow, maybe I will call the drs office today to at least let someone know...I have been living thru so many sxs...just dealing...as when I do the dr thing hasnt done much...well the neuro thing anyhow hehe..

thanks all, and hugssss...heading to work, but might cover part of my shift...first part I just do the crew scheduling....but feeling the same with my legs....trouble is sleep doesnt seem to change anything much...oh well might come home and get off my feet for a while...hugsss,sarah
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