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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

Dr.Phil show, help get the word out about RSD

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Unread 08-15-2008, 02:28 AM   #21
allentgamer
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Hi all!

I just sent in my story under medical nightmares

Hopefully we get some attention here!!

Good job everyone!!!
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Unread 08-15-2008, 05:51 PM   #22
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I got my insurance, so we are moving forward!!!! YAY!!!!!!!! This is such a dream come true! Good luck to everyone, I hope so many letters in such a short time will make them stop and think about this, and do a whole show on it.
I am so excited
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Unread 08-15-2008, 10:31 PM   #23
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Yaaaayyy!!!!!!!


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Unread 08-19-2008, 04:30 PM   #24
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Quote:
Originally Posted by GJmom View Post
I got my insurance, so we are moving forward!!!! YAY!!!!!!!! This is such a dream come true! Good luck to everyone, I hope so many letters in such a short time will make them stop and think about this, and do a whole show on it.
I am so excited
Please, please be sure to let us know when the show will be on. Another RSD website tried Montel but I never knew what became of that. We absolutely need this disease explained to EVERYONE! There are some people I know that I will definitely contact so they will stop asking me what it is, especially my Mother! How do you explain this Monster? I am going to my 7th Dr. in October. I think sometimes I know more than the Dr.`s! I feel like telling them to get some information on the internet! Of course they would NEVER admit they don`t know a damn thing about it! Well good for you and God Bless! I want to say thank you! I really appreciate you taking the time to do all the work to get this on Dr. Phil for all of us! A HUG from me too!
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Unread 08-20-2008, 07:45 AM   #25
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Quote:
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We absolutely need this disease explained to EVERYONE! There are some people I know that I will definitely contact so they will stop asking me what it is, especially my Mother! How do you explain this Monster? I am going to my 7th Dr. in October. I think sometimes I know more than the Dr.`s! I feel like telling them to get some information on the internet! Of course they would NEVER admit they don`t know a damn thing about it!
I totally agree with Franny. The most important thing, in my mind, is public education. I have had so many people, both in and out of the medical professions, take on a blank look when I mention RSD or CRPS.

I don't think anyone expects any kind of a miracle cure from this kind of exposure, but a show like Dr. Phil is not only popular, but is also well respected. If his staff did a little research, they would soon see that one of the biggest problems we have is the lack of understanding.

That is the number one goal I would have in getting a show to discuss RSD/CRPS.

Mike
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Unread 08-21-2008, 09:51 AM   #26
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I just want to say hello to everyone out there who is suffering or watching someone they love suffer. My husband has had RSD for 18 months and we live in rural Illinois so it is very hard to see Dr.s that can or are willing to help. I saw the post about the DR. Phil show and want to say that I emailed them last night also, I hope this helps to get the word out that this is a real disease not just something in ones mind.
I also came across a clip last night about rds. It was a discovery channel show called "Mystery Diagnosis". This episode is about rsd. I can't put the link on this post because I don't have a post count greater than 10. I will keep posting until I have enough then try again.

Quote:
Originally Posted by bassman View Post
I totally agree with Franny. The most important thing, in my mind, is public education. I have had so many people, both in and out of the medical professions, take on a blank look when I mention RSD or CRPS.

I don't think anyone expects any kind of a miracle cure from this kind of exposure, but a show like Dr. Phil is not only popular, but is also well respected. If his staff did a little research, they would soon see that one of the biggest problems we have is the lack of understanding.

That is the number one goal I would have in getting a show to discuss RSD/CRPS.

Mike
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Unread 09-03-2008, 12:23 PM   #27
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A little update...
I am still talking to the producer. She says that we are not on the schedule yet but that we will be on the schedule soon. Also her words "the show on RSD..." Everything was when, there was no question in her voice that it was going to happen. So
yay to that!!!!
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I have the support of a loving husband, and two wonderful children. They make me get out of bed everyday, and fight the pain of RSD
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Unread 09-03-2008, 12:28 PM   #28
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Omg i am so damn excited for you and all of us. Thank you for the update and keep them coming!!!
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Unread 09-03-2008, 01:00 PM   #29
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I am also so excited!! I really hope you get on the show soon and help raise more awareness for RSD!! Please keep us all updated when you can and thanks so much for writing to Dr Phil and helping spread the word for RSD.

I would also like to write into Dr Phil but i'm not sure if I can as I live in the UK (England)

Take care,
Alison
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Unread 09-26-2008, 10:55 AM   #30
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Anymore news on date or anything?? Is it gonna b on dr. Phil or on the drs? I was just wondering thanks
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