Originally Posted by Franny
We absolutely need this disease explained to EVERYONE! There are some people I know that I will definitely contact so they will stop asking me what it is, especially my Mother! How do you explain this Monster? I am going to my 7th Dr. in October. I think sometimes I know more than the Dr.`s! I feel like telling them to get some information on the internet! Of course they would NEVER admit they don`t know a damn thing about it!
I totally agree with Franny. The most important thing, in my mind, is public education. I have had so many people, both in and out of the medical professions, take on a blank look when I mention RSD or CRPS.
I don't think anyone expects any kind of a miracle cure from this kind of exposure, but a show like Dr. Phil is not only popular, but is also well respected. If his staff did a little research, they would soon see that one of the biggest problems we have is the lack of understanding.
That is the number one goal I would have in getting a show to discuss RSD/CRPS.