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My VEEG Experience

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Unread 05-19-2007, 08:39 AM   #11
flopper
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Question Veeg?

Ellie- I recall you recently had to deal w/ this. I go on the 29th for three days. Since my memory is not up to par could you tell me why the VEEG was/is done? Like I said my memory is poor & when the neuro suggested it I merely agreed. Can't remember what he said it would do. Long story!
It is set for 3 days, so aside from what you previously posted I would appreciate any info. I recall (vagually) the drill eeg thing prior to the 2nd surgery, but I assume this veeg will not go that far in. Your photos no longer appear here & I certainly hope I am not strapped to a bed. ) Of course my important question is what type of clothing can be worn ? I hope I can wear my comfy sit around clothes.
Any help would be appreciated. At the hospital 2 wks ago the EEG, which was only about 20 min. sad "rt aral abnormality, rt (borderline) axis deviation"moderate amounts of theta activity is seen w/ delta activity over the left hemispheric rythms. RT heispheric activity consists of 8-9 cycles per sec. activity. Moderate amounts of theta activity & large amounts of delta activity is seen over the rt hemispheric electrodes."

"Impression: This eeg is abnormal. greater slowing seen over the rt hemisphere suggests an area of structural abnormality. No epileptiform activities were see. "
And I really need an opinion, on that "Impression" please.

Thanks Ellie!!
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Unread 05-21-2007, 11:57 AM   #12
beckyboo
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Flopper,

When I went in for a VEEG, I had to make sure that I brought clothes that buttoned down the front. That was so my EEG wires weren't messed up. Also, bring plenty of things to keep you occupied. Like puzzle books, reading material, stay in bed or chair things.

I was taken off my meds so that I would have a seizure. The meds were taken off gradually in 2 days time. I had the seizure on the 3rd or 4th day. It was actually 4 seizures in 4.5 mins time. Besides recording the seizures on the EEG, you are also being recorded on a video camera. The only time that they can't record you is when you are in the bathroom. This is so the doctor can see what happens when you have your seizures. This gives them a better idea of what goes on during that time.

Becky
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Unread 05-21-2007, 12:43 PM   #13
flopper
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Thank you Becky. Very good to know I can relieve thyself in silence. I was really considering cancelling it for that purpose.
I have selected some DVD's for my head set, but I wonder if that will interfere w/ the EEG? All that "electricity" you know.
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Unread 05-21-2007, 01:42 PM   #14
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I had a VEEG once and have a couple of tips.

Where I went they had a TV so I brought a DVD and a playstation. I don't really like videogames but my husband thought it would help with the night I had to stay up all night. It DEFINITELY did!

I would take a lot of pillows because it can be difficult to get comfy with all of the leads. I would definitely take your own jammies so that you are comfy too. They let me use linen spray as well so it seemed more homey.

I didn't receive any serious wounds from when they took the leads off, the guy was pretty patient, but I did lose quite a bit of hair. The glue is really thick.

I left the hospital crying and went straight to my kid's Godmother's salon. She is from the Ivory Coast and runs an ethnic hair salon. My suggestion is that when you get out or before you go drop by an ethnic salon in your area and buy some of the heavy duty conditioner there. She had me use an entire bottle. I would wet my hair, put a third of the conditioner in it, let it sit for 15 minutes, then start to brush through it, then rinse. I did this whole process 3 times and didn't lose too much more hair. My hair has always been thin, especially with the AEDs, and this seemed to help.

God Bless.
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Unread 05-21-2007, 02:19 PM   #15
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That's odd, the pictures should be working.

Anyway, as stated above you'll want to wear something that buttons up. I'd suggest wearing cotton, also. As sitting in the same spot can cause you to sweat which will bring even more discomfort. They had told me I could walk about my room, but they failed to mention any time I wanted to stand up to even use the restroom or move to a chair I had to call a nurse and have them 'escort' me.

I had mine done mainly because my medications weren't working so they wanted to see how I did with it compared to without it. They also wanted to better pinpoint a location since my EEG's tend to vary in regards to seizure activity location(s).

You should bring conditioner and johnsons first aid cream. I imagine you'll want to rush home, so once they take the electrodes off - put cream on your face and conditioner on your hair. Toss a hat on and rush home - then you can clean up better there.

I'd also suggest bringing a laptop computer, dvd's, books, video games, and/or anything that will keep you busy because it's totally boring. I'd also bring snacks, or set it up for someone to bring you dinner because hospital food stinks.
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Unread 05-21-2007, 04:22 PM   #16
flopper
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Ellie-
I picked up the Johnsons cream this A.M. I'm doing the VEEG because they are not showng via the simple EEG, or else they think I'm nuts. )
I managed to lose 5 lbs during 4 days @ the hospital, so I will indeed stock up.

Bams1414- I had intended to get a hair trim tomorrow. Very thick hair, so I imagine I will lose a good amount. Thanks for that conditioner tip! They haven't informed me yet what to expect, but they best have java on hand if they want me to be up all night. I can be very grumpy if I don't get my naps. I am a rather inpatiant person, so I imagine they will be glad to see me off.
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Unread 05-31-2007, 08:05 AM   #17
LCat
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Ellie could you please post the link to your blog. I have read everything you wrote here and am very interested in seeing pics and reading your blog.

I can't bring computer in fact I can't bring anything that plugs in except for a hairdryer which is dumb because. I can't wash my hair until after it is all said and done. I got 2 big puzzles and I am going to get some SUDOKU books, crosswords and find a words plus LOTS of books. I love to read.

My Mom is going to help me sew a few simple button down shirts so I will be comfortable.

Thank you so much for the info about the shampoo and conditioner and the Johnson first aid ceam we live three hours away from UVA Charlotesville so I have to wash hair and such before we come home.

Thank you so much for all the info. I hate suprises and I feel so much better when I know what to expect. All they gave me was asheet of aper that said wash your hair, wear button down shirts, bring nothing to plug in but a hairdryer, and expect to stay from 1 to 14 days.

Cat
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Unread 05-31-2007, 10:24 AM   #18
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Sadly I don't have everything uploaded and my scanner/printer must have been injured during our move as it's unwilling to work now (unless making honking sounds at me counts).

Let me know if you guys can't see the pictures on my first and second post in this thread. If they aren't working I'll try and get them uploaded somewhere else.

I've been trying to work on my own website that just uploads stuff but gives me a printing option. I've usually used microsoft word as my seizure journal and medical blog then I scan my reports and stuff and keep it all in one folder. My friend is helping me to make a website so it's all uploaded (incase my pc crashes or I lose the papers). Once it's done I'd like to share but I don't think we could cause of HIPAA stuff, hehe. I could probably share the seizure journal and blog part though then password protect it (I open by date and click a print button if I need a copy to take to new doctor and have one to select all to print, kinda like e-mail).

Anyway, I'm babbling. My pain pills from surgery make me kind of loopy.
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Unread 05-31-2007, 10:31 AM   #19
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the pics have been gone awhile ellie. i thought maybe you have removed them.
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Unread 05-31-2007, 10:41 AM   #20
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Well shoot, no I didn't. I'll get that fixed right away. I'm pasting it all over to Blogspot right now. Gosh, I'm so sorry.
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