Originally Posted by massageSA
How far can this thing go? It comes and goes often now but it's annoying. Just a couple of weeks it started in my throat. Only the TN affected side. Feel like when you have a swolen tonsil but it's not swollen and I'm not sick. then the side of my tongue feels like I bit it way in the back. No sores no nothing just pain. Wow.
Hi. I'm brand new here and your thread caught me right away. You are describing what is going with me right now, if you add the parotid gland swelling - all one sided. As with you, comes and goes. In addition, pain behind and/or under ear is horrendous. This may be ATN, am trying to get dx, looking for new neurologist.... may see Dr. Casey. Anyway, sorry that you are suffering also with this. I take low dose Lyrica which helps but doesn't stop/prevent. Tegretol and neurontin just have too many side effects for me, have used them in past.
Glad to have found this site!