Originally Posted by kristen8283
My sister has Lymes disease, Erlichiosis actually (a specific type of Lyme if I spelled that right). She has had it for the past 3+ yrs and it is escalating despite repeated heavy doses of antibiotics. In fact she is now having many, mini-strokes a day. She is getting nowhere with the Dr.s she has seen (Neurologist, GP). She does however have an apt with The Mayo Clinic in August but she just read some mixed reviews on their tx with Lymes.
Any thoughts or ideas would be appreciated.
Hi Kristen, I don't have any info about Mayo's lyme treatment but I would recommend that your sister find a lyme-literate md(llmd). They often don't accept insurance, but some insurance companies will reimburse some of the appointment. A llmd can suggest many treatment options along with/besides antibiotics, and tend to be the most knowledgable when it comes to lyme or it's co-infections. I don't know the name of the site, but if you search around a little on the internet you should be able to find a site that will locate a llmd in her area.
Take care, Diana