I can't remember if you're on any anti-epilepsy meds, but the gabapentins are famous for affecting your sense of taste. I'm on neurontin and although it doesn't affect my taste buds too much, it gives your mouth a strong kind of sharp metallic flavour, I have to clean my teeth all the time.
But Topamax!! - everyone says it makes everything taste like *****
- specially sodas and sweet things. We had a record-breaking thread on the old forum - it ran to about 30 pages, maybe more, and it all began with the discovery that the newly-approved Topamax caused this!
I suspect many meds will cause some change, so you're certainly not alone with this particular problem.
Glad you're back home - how's the chair, and have you had any more thoughts on the DBS option?
all the best!